This s a little story of a woman with NF2, the same disease I have. So this is kinda personal, in a way:
]When Shannon was just 5 years old she underwent her first surgery because of a genetic disorder called Neurofibromatosis type 2 (NF2, for short). Over the next 20 years she underwent an additional 19 surgeries including 4 brain surgeries. The disorder causes benign tumors to grow throughout her body from just inside the skin to deep inside the brain and spinal cord. NF2 has left her with no hearing and many other weaknesses. There is one major strength within her; it is her desire to persevere. She continues to want to get better and to be able to do things to help others. On October 6, 2012 she married Charles Wachal and the two enjoyed the first year of their marriage. During this time she also gave birth to their wonderful daughter Abigail Grace. She is a sweet 6 month old now. Deep inside Shannon much was changing however and after two MRIs they have determined that her tumors in her brain have grown significantly. Shannon had 80-90% blockage in her c2 vertebrae which was causing major weakness in her body. On their first anniversary, Charles sat by her side and prayed, as she slept in ICU. She had surgery for that spinal tumor in October 2013, however more testing has revealed other growing tumors, major weakness, headaches, recent inability to keep down food and other significant symptoms. Shannon and Charles have a good life together but financially this will be a major burden for them to bare. The cost of traveling to and from hospital stays, surgeries, recovery, and follow-ups will be enormous along with the living expenses, and for Abigail’s care.
Any donation would be greatly appreciated.
I feel so much connection and desire to help my dear friend, as I too have the same disorder, NF2, which also took my hearing; however I am blessed to be in better physical health, at this time. I have done a LOT of fundraising over recent years, for NF awareness and medical research... but I have not before now set a single goal to help one very good friend.
Please support Shannon, as she strives to be the healthy mommy she has always dreamed of being!
If you would, send this link to as many ppl as you can and/or make a small donation, even if it's a mere $5. Over $1k had been made so far--let's jump that number up!
http://www.youcaring.com/medical-fu...the-healthy-mommy-she-dreams-of-being-/115104
]When Shannon was just 5 years old she underwent her first surgery because of a genetic disorder called Neurofibromatosis type 2 (NF2, for short). Over the next 20 years she underwent an additional 19 surgeries including 4 brain surgeries. The disorder causes benign tumors to grow throughout her body from just inside the skin to deep inside the brain and spinal cord. NF2 has left her with no hearing and many other weaknesses. There is one major strength within her; it is her desire to persevere. She continues to want to get better and to be able to do things to help others. On October 6, 2012 she married Charles Wachal and the two enjoyed the first year of their marriage. During this time she also gave birth to their wonderful daughter Abigail Grace. She is a sweet 6 month old now. Deep inside Shannon much was changing however and after two MRIs they have determined that her tumors in her brain have grown significantly. Shannon had 80-90% blockage in her c2 vertebrae which was causing major weakness in her body. On their first anniversary, Charles sat by her side and prayed, as she slept in ICU. She had surgery for that spinal tumor in October 2013, however more testing has revealed other growing tumors, major weakness, headaches, recent inability to keep down food and other significant symptoms. Shannon and Charles have a good life together but financially this will be a major burden for them to bare. The cost of traveling to and from hospital stays, surgeries, recovery, and follow-ups will be enormous along with the living expenses, and for Abigail’s care.
Any donation would be greatly appreciated.
I feel so much connection and desire to help my dear friend, as I too have the same disorder, NF2, which also took my hearing; however I am blessed to be in better physical health, at this time. I have done a LOT of fundraising over recent years, for NF awareness and medical research... but I have not before now set a single goal to help one very good friend.
Please support Shannon, as she strives to be the healthy mommy she has always dreamed of being!
If you would, send this link to as many ppl as you can and/or make a small donation, even if it's a mere $5. Over $1k had been made so far--let's jump that number up!
http://www.youcaring.com/medical-fu...the-healthy-mommy-she-dreams-of-being-/115104
Last edited:
