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thalassemia.info
I was contacted for this name. I have copied and pasted information from thalassemia.com which seems to be the official site of the research behind this genetic disorder
.........Thalassemia is the most common, inherited single gene disorder in the world. Early comprehensive treatment has changed thalassemia from a fatal pediatric disease to one in which patients live productive lives throughout adulthood. Advances in treatment are exciting, resulting in the potential for cure and improved quality of life. However, many patients never receive the information needed to make educated decisions about treatment.....
.info seems to be the perfect place to find info....what are your thoughts?
I was contacted for this name. I have copied and pasted information from thalassemia.com which seems to be the official site of the research behind this genetic disorder
.........Thalassemia is the most common, inherited single gene disorder in the world. Early comprehensive treatment has changed thalassemia from a fatal pediatric disease to one in which patients live productive lives throughout adulthood. Advances in treatment are exciting, resulting in the potential for cure and improved quality of life. However, many patients never receive the information needed to make educated decisions about treatment.....
.info seems to be the perfect place to find info....what are your thoughts?
