You might not get much response here unless someone who knows about that disease sees your post, and even that wouldn't give you a good reference for the domain's value.
Here's a hint though: Google "adsense keywords" or "adsense search terms" and see if that disease is listed (this will take some time), and what it's "per-click" bids are estimated at.
I know, I know... I used a wrong choice of words. I apologize
My mom died of cancer while I have NF2 (a different from of NF). I don't think it's funny, no. I shouldn't have implied that Sorry